H1481: Sickle Cell Disease Medications, Treatment, and Screening

Legislative Summary

Requires certain health care providers to notify primary care physicians of newborns & infants of certain screening results relating to sickle cell hemoglobin variants & to submit such results to DOH for specified purpose; requires such physicians to provide certain information to parents & guardians; requires DOH to establish & maintain sickle cell registry; authorizes parents & guardians to request to have their children removed from registry; requires AHCA to review sickle cell disease medications, treatments, & services for Medicaid recipients & develop written report, post report on its website, & submit copy of report to Governor, Legislature, & certain entities.