2025-2026 Regular Session • New York Legislature
S01287
Legislative Summary
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Demographic Impact
Overall analysis of equity impact
90% Positive
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Bill History
1/9/2025
REFERRED TO HEALTH
Senate
1/30/2025
AMEND AND RECOMMIT TO HEALTH
Senate
1/30/2025
PRINT NUMBER 1287A
Senate
3/4/2025
1ST REPORT CAL.487
Senate
3/5/2025
2ND REPORT CAL.
Senate
3/10/2025
ADVANCED TO THIRD READING
Senate
3/19/2025
PASSED SENATE
Senate
3/19/2025
DELIVERED TO ASSEMBLY
Senate
3/19/2025
referred to ways and means
Assembly
Roll Call Votes
Senate Floor Vote - Final Passage
3/19/2025
60
Yea
0
Nay
0
Not Voting
3
Absent
Result: PASSED
Senate Health Committee Vote
3/4/2025
15
Yea
0
Nay
0
Not Voting
0
Absent
Result: PASSED
Status Information
Current Status
Engrossed(3/19/2025)
Chamber
Assembly
Committee
Ways and Means(Assembly)
Sponsors
Democrat: 9
Republican: 4
Primary Sponsor
Roxanne Persaud
Democrat