2025-2026 Regular Session • New York Legislature
A01296
Legislative Summary
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Demographic Impact
Overall analysis of equity impact
90% Positive
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Bill History
1/9/2025
referred to health
Assembly
1/29/2025
amend and recommit to health
Assembly
1/29/2025
print number 1296a
Assembly
2/4/2025
reported referred to ways and means
Assembly
Roll Call Votes
Assembly Health Committee: Favorable refer to committee Ways and Means
2/4/2025
23
Yea
0
Nay
0
Not Voting
3
Absent
Result: PASSED
Status Information
Current Status
Introduced(1/9/2025)
Chamber
Assembly
Committee
Ways and Means(Assembly)
Sponsors
Democrat: 12
Republican: 8
Primary Sponsor
Amy Paulin
Democrat
Co-Sponsors (19)
Nader Sayegh
Democrat
Nikki Lucas
Democrat
Joseph DeStefano
Republican
John McDonald
Democrat
Steven Otis
Democrat
David Weprin
Democrat
Samuel Pirozzolo
Republican
Daniel Norber
Republican
Michael Novakhov
Republican
Lester Chang
Republican
George Alvarez
Democrat
Jeffrey Dinowitz
Democrat
Erik Dilan
Democrat
Linda Rosenthal
Democrat
Aron Wieder
Democrat
Brian Manktelow
Republican
Angelo Morinello
Republican
Joseph Angelino
Republican
Rebecca Kassay
Democrat