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2025-2026 Regular Session • New York Legislature

A01296

Legislative Summary

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Demographic Impact

Overall analysis of equity impact

90% Positive
High ConfidenceView detailed demographic breakdown ↓

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Bill History

1/9/2025
referred to health
Assembly
1/29/2025
amend and recommit to health
Assembly
1/29/2025
print number 1296a
Assembly
2/4/2025
reported referred to ways and means
Assembly
5/27/2025
reported referred to rules
Assembly
5/29/2025
reported
Assembly
5/29/2025
rules report cal.291
Assembly
5/29/2025
ordered to third reading rules cal.291
Assembly
5/29/2025
substituted by s1287a
Assembly

Roll Call Votes

Assembly Rules Committee: Favorable
5/29/2025
27
Yea
0
Nay
0
Not Voting
4
Absent
Result: PASSED
Assembly Ways And Means Committee: Favorable refer to committee Rules
5/27/2025
30
Yea
2
Nay
0
Not Voting
3
Absent
Result: PASSED
Assembly Health Committee: Favorable refer to committee Ways and Means
2/4/2025
23
Yea
0
Nay
0
Not Voting
3
Absent
Result: PASSED

Status Information

Current Status
Introduced(1/9/2025)
Chamber
Assembly

Sponsors

Democrat: 13
Republican: 8

Primary Sponsor

Amy Paulin
Amy Paulin
Democrat

Documents

Introduced
Bill Text • 1/9/2025 • 11.3 KB
LegiScanState Site
Amended
Bill Text • 1/9/2025 • 11.0 KB
LegiScanState Site

External Links

View on LegiScanView on State Website